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Long time no see

 I have not written in a very long time on Chronic Idiopathic Urticaria. Starting in 2020 I was able to get off of all meds except Xyzal once a day. I try to go a few days to a few weeks without it but if I stay off it too long it takes just as long to recover, I feel most of the inflammation in my body, and its hard to describe what that feels like. But its pure exhausting when I do so. So I will give myself a couple days of not taking anything then start again. These days if I go a day or two too long it feels like mosquito bites all over.  Looking back on the journey I am surprised at myself. For keeping a job, for getting a job where the boss was understanding, and just making it through, with so many people not understanding where I was at. Its a confusing disease, with so many people with the same diagnosis but hardly the same symptoms. And still, to this day people don't understand the difference between being sick and having an autoimmune chronic illness. To this I am glad
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The Journey Continues

I'm now at 8 weeks for the shot. Next month will be 8 weeks again and now half a dose. I am experiencing a lot of dizziness from the medicine-but it gets better the closer it comes time for the medicine. Right now my eyes are extremely dry-itchy. Can't wear my contacts or makeup!I am now not sure if its from the hives trying to come out or just from the medicine. It will go away in a few days as it normally does when this happens-though it hasn't happened in a while. My specialist doctor is officially gone. Which is ok-I might be getting close to being done with this. The real test is after next month. She had said to 'skip' a month and see what happens. I still have small symptoms. My one ear still gets red and swells-and stops after a few minutes. Usually I would break out after that happened. I don't think I'm completely out of the woods yet. But we aren't going to know anything if I don't keep lowering the med. I am nervous but I do trust my pr
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Latest update 5/29/19

About 5-6 weeks ago my body got so dry if you lit a match near me I would have exploded. I couldn't keep up with the powerades and lotions, my body just sucked it in as if I were a desert itself. After emailing my doctor, she said to try to go without the allegra for a couple weeks, then try without the zyrtec. I was nervous because the last time I did this, I reacted as usual and couldn't handle the sun or anything that was light. 2 weeks went by, everything was fine, so I went without zyrtec. I had small reactions, I could feel the itch in my right hand. But it wasn't bad, and I could definitely ignore it. So I did. It moved to my right foot, my right side of my back and then gone. It went about this way for a couple days then disappeared. NICE. So naturally, last week I started to try beer again. It went so well I drank 1-2 every day. Then this weekend we went to the cities and I had my hand at moscow mules which were the most delicious drink i've had in a long
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Peloton

I promise I will update on health soon. But things are on the upswing these last 3 weeks. I have begun to tell people about it, but I want to wait another week or so until I blog about it. Just because I don't want anything jinxed and theres still a small chance things can go back to square 1. One recent awesome thing in my life recently has been the peloton app. I have been obsessing over their spin bike with the tv attached for almost a year now. It has great content for spin, running, walking, yoga, stretching, meditation and strength. I almost pulled the plug and bought the bike. But at over $2,000 and by owning the bike the app goes up to $40 from $20 (if you use the app alone with no bike), the pricetag made me gag a little. So I invested in a cheaper but sturdy Sunny bike and bought wahoo adapters to track my cadence and speed. I have found an app that I can cast a class onto my large screen tv so I literally feel like I'm there as long as my dog doesn't freak o
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try try again!

So this last shot a couple weeks ago went ok. No swelling of the face etc. Great. This time I went at 8:15 am and went back to work. Normally I was doing after lunch but due to the issues last month I wanted to wait out the whole day when I was close to an ER. The different this time is once I got to work, I got double vision and felt suddenly very weak. I had to call my mom for an emergency sports drink as drinking a bunch of water was not cutting it. After getting the powerade I felt better within 30 minutes. Dehydration is a bitch. Since there was no swelling this time I followed my docs orders and discontinued the nighttime allegra. She said if that went well to discontinue half of the zyrtec at night, just to try. I have noticed in her notes she doesn't put everything she said in the notes, which isn't that big of a deal. Because if shes covering her ass on certain things, but still willing to give me suggestions to help me with the dehydration shit, I don't care. I
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Continued..

So after my doctor appt last week she had said no make up for a month to see if that is whats causing all my eye issues. So I look like a homeless bum with nice clothes. If only I didn't work in an office this would be so much easier! It'll be good to eliminate if make up was the reason though... Then I had my shot as usual last thursday. I felt a swelling and numbness in my face. I didn't see it as a big deal, I usually feel a little something but it always goes away a while after the shot. So I didn't bother to tell the nurse. Well it got worse as the day went on and stayed that way until I woke up Sunday morning. This makes me very, very nervous to get my shot again next month! Of course I emailed her today, after some back and forth I will start taking my allegra again at night before day of and after the shot. If I swell again after the next shot, my only options are to take a steroid the day of the shot, or quit the shot all together. And I don't know if I
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Dr appts

Today I had my follow up with Dr. Nakai. GOD would I hate her job. You have mere minutes to listen to a patient and figure out whats up with them. Physically and mentally. Ha. When I described my eye flares, looking like I got punched in the face etc. She thought it out thinking it possibly could be make up, but after some discussion determined it probably is the hives, but to maybe try to do no eye make up for a month. In discussion over my extreme fatigue, there's not much you can do about it. Just try to not over exert myself, aka, slow down at the gym. Which is true. Those days where I'm feeling great, I ruin it by DOING ALL THE THINGS. It flares me up and fatigues me. I in general need the rest anyways, so the truth is, I need to not work out so hard. :( this makes me sad as working out has caused me to lose weight and feel good in general, but I will listen to these warning bells of fatigue. THEN, with all this information at hand, she suggests again to lower one o
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